Historically, there has not been an equitable place for community, or effective engagement of community in scientific research. Further, too often researchers have come to community to do for and to community, but never truly with community, in equal partnership.
The current funding structures and social beliefs perpetuate researchers coming into communities with their bias about what the community needs. These perceived needs are almost always driven by a deficit model, which sees the community as “at risk”. With researchers taking their cues from well-intentioned requests for proposals (RFPs), which are rarely crafted and developed to promote equitable partnership with community. Researchers enter the research relationship with the community handicapped.
Without an understanding of the needs of the community from the communities’ perspective, respect for the communities’ understanding of its capacity and priorities, and an engagement of community in the process (from inception to data dissemination), one can only question the quality and validity of the research itself. This historical approach to community-academic partnerships has made it difficult for communities to trust researchers and prevents them from applying the scientifically enhanced knowledge produced from the research to their lives, or their initiatives that will allow for policy advocacy.
Community-based participatory research (CBPR) uses a collaborative approach that equitably involves all research partners and recognizes each partner’s unique strengths. Based in social science and public health, many medical projects based in the community without true partnering used the label CBPR, therefore we adopted the term “community-partnered participatory research” (CPPR) to emphasize partnering with communities rather than possessing a location within the community to conduct research. CBPR/CPPR facilitates knowledge sharing between community and academic partners; incorporates community priorities into research questions, study design, analyses, intervention development and dissemination of findings; thereby building community and academic capacity for conducting partnered research.
Although CBPR/CPPR shows promise for improving population health and reducing disparities, there is only limited evidence to date on the impact and sustainability of these efforts. Based on the potential of CBPR/CPPR to transform communities and build community capacity we sought to leverage its principles into a national center to serve as a resource to community members seeking guidance in being part of a community-academic partnered research project.
Comprised of a network of experienced community-based leaders from across the nation, NCCPRE is a 501(c) 3 headquartered and chartered in Los Angeles, CA; with regional representation divided into 10 U.S. regions: North Eastern, Eastern, South Eastern, Southern, Great Lakes, North Western, Mid-Western, Lower North Western, South Western, and Pacific. Community participation will be facilitated via community-based centers throughout the U.S.
NCCPRE exists to:
- Serve as the national clearinghouse for community-based research, providing linkages for partnership opportunities, disseminating important health and healthcare information;
- Serve as a hub for training, consultation and technical assistance; and on implementing effective partnership models and approaches
- Actively expand the network and support bi-directional feedback for new ideas and innovations in health and health care information
- Advocate for community while working with academic institutions, and serve as a mediator and negotiator between the two when needed.
“The National Community Center for Participatory Research Excellence is a clearinghouse for community research and research ideas. The research will be channeled through this center, reviewed for ethical principles, feasibility and community implementation. This will be accomplished through community reviewers who will be involved in all phases of the research process utilizing the principles of Community Partnered Participatory Research (CPPR).”
That all research done in our community is ethical. All research serves to benefit the community.
Research in communities is participatory in nature and reflects the engagement of community leaders, practitioners and academics from implementation to dissemination, including community authorship on papers. Research privileges cultural competency, appropriate literacy level, and equity in the distribution of research dollars.
NCCPRE provides several key functions to community agencies, community members, academic institutions, government health care systems and private industry.
Key Functions include:
- Ensuring that the Internal Review Board (IRB) process is ethical and viable for vulnerable, socially and economically under-resourced communities.
- Strengthening CPPR collaborations and partnerships.
- Transferring knowledge between universities, funders, and communities.
- Providing support for local Community Centers of Excellence.
- Convening accredited workshops on research content and principles eligible for continuing education certification.
- Advocating at the state and federal level for more community engagement in research.
NCCPRE is a cost-effective, centralized, sustainable entity designed to serve as a clearinghouse and linkage for partnership opportunities between communities and researcher, increase community and researcher capacity, disseminate data, affect policy and improve health outcomes.
NCCPRE Board is comprised of 23-members who provide governance and jointly oversee the activities of the organization. Additionally, NCCPRE has the support of an experience rich group of advisors who support and extend NCCPRE’s mission. NCCPRE is also supported through partner relationships with community leaders, ethnic population reps, academia, and government.
BOARD OF DIRECTORS
(Long Beach, CA)
John Mark Cooks
(Los Angeles, CA)
E. Hill De Loney
Anna “Aziza” Lucas-Wright
(Los Angeles, CA)
Dr. Earnestine Willis
(New York, NY)
(Ann Arbor, MI)
(Los Angeles, CA)
Deloris Green Williams
(Los Angeles, CA)
BOARD OF ADVISORS
Dr. David Satcher, MD, PhD
Dr. Robert H. Brook, MD., ScD
Dr. Camara P. Jones
Dr. Kenneth B. Wells, MD, MPH
Dr. Barbara A. Israel, Dr.P.H
Dr. Keith C. Norris, MD, PhD
Dr. Nina Wallerstein, DrPH, MPH
Dr. Diane Rowley
Dr. Paul Koegel
Dr. Giselle M. Corbie-Smith
We appreciate your continued support and welcome your questions. We look forward to connecting with you.
4305 Degnan Blvd., Suite 105
Los Angeles, CA 90008